According to Daily Mirror,Hayley Webb, 30, and her brother Lachlan, 28, suffer from Fatal Familial Insomnia, a harrowing condition which so far has no cure.
Tragically, the disorder has already killed their mother and grandmother.
But now, they are undergoing tests to try and find a cure before the disease manifests itself.
FFI causes irregular clumps of protein to damage nerve cells and make holes in the part of the brain that regulates sleep.
Hayley said: "It could happen tomorrow but until we're in that danger zone we probably have a good 10 years up our sleeve and I am praying that there is a cure between now and then.
"I don't want to sit here while the sands through the hour glass pass waiting for it to trigger and for me to cark it.
"I want information, I want answers and I want a bloody cure.